A Grand Privilege

Today, we learned Charlie has an extra chromosome, Trisomy 21, or Downs Syndrome.  It was no doubt a sobering moment.  Debbie and I now know the incredible calling we have as parents.  We get to love and serve this child like we have no other.  We consider it a privilege to have this calling, it seems right.

Had I written his genetic code, I would have left that extra chromosome out.  However, God wrote that code long before me. To compare my will (did I tell you I am a sinner? Romans 3:23) with God’s will (among all things good, God is love 1 John 4:8) is like comparing a grape to the sun.  It’s sweet and all, but shrivels up when held close.  God determined this for Charlie, and God is infinitely good.  Who am I?  I am undeserving of God’s mercy and blessing.

This is not about me, my bride, or even Charlie.  I am excited to learn how God will make Himself known through Charlie.  Charlie is a warrior, he has been fighting since his last day in the womb.  God will use Charlie for good, I am eager to learn what good that will be.

I remember whispering to him and kissing his little head after we entered the Childrens ER in Parker.  I said ‘You fight Charlie, you fight!  Don’t give up, Jesus will help you, trust Him, Jesus will help you’.  We asked God to help him, and He did.  There must have been 15 people in that tiny room, working in unison, using their God given talents to bring Charlie back to life.  God helped Him, and is helping him now.  I did not lie to my precious son, God is faithful

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One doctor told me privately that if I wanted them to stop, to just let her know.  I was quite taken that stopping was an option, but asked her to please give him every possible opportunity to live.  She was invigorated, and went right back in to the battle.  This is the flight team that performed CPR on Charlie and brought him to Childrens Aurora.  They are briefing the NICU and Surgical team here.

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Charlie is no accident or mistake, but a fearfully and wonderfully made soul, still made in the image of God.  He is worth fighting for.

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So, it is a privilege to have such a soul in our care.  His siblings are so excited about their baby brother, it is as though they feel blessed by the news.  A few days ago, I mentioned to my eldest son, David that we had requested this genetic test to know best how to care for Charlie.  When I mentioned it could well be positive, he said something like “I think it would be good Dad, it would strengthen our family and help us to love each other more”.  This is a testimony to you families we know with such a one in their families.

The nurse just turned off Charlie’s epinephrine (blood pressure med) pump about 20 minutes ago.  Another battle down, he is handling it fine, his heart is maintaining pressure.  Also his infection is “way down”.  Earlier today, his O2 was reduced, other meds reduced, Drain tubes and stitched were removed, and one of many IV ports removed.     God is answereing our prayer, He is healing.

One friend just said ” Hey bro, that kid is not going to have a lack of people loving him. It is going to be overwhelming!!!”  We are humbled by the amount of love that has been shown to us.  “But God shows His love for us in that while we were yet sinners, Christ died for us” Romans 5:8.  You have been as Christ to us.  My family and I are grateful.

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10 thoughts on “A Grand Privilege

  1. God is soooo amazing! Charlie is amazing! Your whole family is amazing!! Praise Jesus! I see sweet Charlie bringing our whole family so much love and laughter in the future. I can’t wait! This sweet little boy should be an inspiration to all of us. He is already changing the world with his fight and strength.
    Bob, what you told your beautiful son that morning was so perfectly right. “Jesus will help you, trust Jesus.” Beautiful words. I hope Charlie is not only an inspiration to people he meets, but his story will also be an inspiration to people he doesn’t even know. To our brothers and sisters who are in doubt or on the fence about our Great Father, may Charlie’s life strengthen their faith and bring them so much hope. Our sweet Lord is already doing so much through Charlie’s little life. How exciting!!! We love you Charles Grant Fine. You couldn’t be anymore perfect!!

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  2. Wow, that is a grand privilege. God is and already has used your family to be an awesome testimony to me of His great faithfulness and His amazing love for us!

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  3. Praising the Lord for strengthening little Charlie. He is already mighty in the Lord!
    Thank you Jesus for preserving Charlie Fine, for saving his life. You have given Him such a sweet and loving family–his life and theirs will be a testimony to You.

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  4. Debbie, I just heard about Charlie’s “battle”, and am catching up on the blog. Blessings to you and your family…most especially sweet Charlie! I will be praying for all of you. What a miracle–that Charlie is with you and God is working through this time. Stay strong and let me know if there is anything I can do.

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  5. Joh 11:3 So the sisters sent to him, saying, “Lord, he whom you love is ill.”
    Joh 11:4 But when Jesus heard it he said, “This illness does not lead to death. It is for the glory of God, so that the Son of God may be glorified through it.”

    What a wonderful privilege to see God’s mighty hand at work! Little Lion-Hearted Charlie has already testified to so much of the love and power of the Almighty God we serve! May he bring Him glory all the days of his life and many giggles and joy to the Fine family!

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  6. We were touched reading today’s post. What amazing love, God’s love, that is being poured out on Charlie through your sweet family. What amazing, healing, and powerful love 🙂 And the words spoken, life-giving words, over him~
    We are praying for strength and grace for you all!!!

    Psalm 121
    I will lift up my eyes to the hills—
    From whence comes my help?
    2 My help comes from the Lord,
    Who made heaven and earth.
    3 He will not allow your foot to be moved;
    He who keeps you will not slumber.
    4 Behold, He who keeps Israel
    Shall neither slumber nor sleep.
    5 The Lord is your keeper;
    The Lord is your shade at your right hand.
    6 The sun shall not strike you by day,
    Nor the moon by night.
    7 The Lord shall preserve you from all evil;
    He shall preserve your soul.
    8 The Lord shall preserve your going out and your coming in
    From this time forth, and even forevermore.

    To life~each one beautiful and precious 🙂
    (the price family from Utah)

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  7. Life…what a precious, precious gift! God is already using Charlie in a mighty way!
    I’m looking forward to what God has in store for little Charlie and the whole Fine family!

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  8. What a powerful testimony little Charlie is (and your whole family). You do have a great privilege and blessing in this little guy the Lord has entrusted you with. We continue to pray and praise God for those prayers He has already answered.

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  9. Charlie and your whole family is so much in our hearts and prayers! We know very well that this precious son of yours is and will be an amazing blessing to everyone he meets.
    We will keep praying fervently for him. God created a mighty arrow when he made Charlie. We are thankful for Charlie too!
    Love, Kimberly and the Whims family

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  10. Charlie is a miracle ……he changed the way we look at life in so many different ways….he accepted pain to the maximum, still a very happy boy…that is amazing…his family more than accepted the challenge they embraced it…..
    Just know this Charlie you will be in our hearts forever..

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