The day before it was confirmed that Charlie had Down’s Syndrome, I went to the hospital cafeteria for breakfast. It was a surreal time. I sort of felt like God was preparing me for the diagnosis. The whole place was empty except for a lovely husband and wife with their teenage boy who had Down’s syndrome. I couldn’t take my eyes off of him. He was delightful. I felt myself wanting to get up and go squeeze him. It was there I told myself that if Charlie did have Down’s Syndrome that I would be the kissiest mama in the world to him. I imagined myself kissing his head ALL of the time and hugging him when I wasn’t kissing him and then kissing him again when I was done hugging him. I knew it didn’t matter if the test was negative or positive…I was going to LOVE my boy all the same. Charlie had my heart from before he was even conceived. My love for him grew with each passing day in the womb. And when he was born, oh the love was exponential- and has been every day since.
When Charlie was about a month old and I was having a hard time imagining life outside of the NICU, nonetheless with his unique gift of an extra chromosome. God gave me just what I needed, a real surprise! I had just stepped out of the elevator. My eyes immediately caught a darling little boy sitting in his stroller with his mama in the hospital lobby. I could not take my eyes off of him. I tried to walk towards the doors, but my feet took me straight to this little cherub. I started talking to him. This 18-month old T21 baby gave me a “hi,” a wave, and the cutest smile ever! Somehow, it gave me a little more hope, a little more vision, and definitely a dose of joy in regards to our new situation. His sweet mom and I decided to exchange information. She said her little boy’s name was Charlie…I looked at her and said, “Wow! That’s my son’s name too!” Then she told me her name was Deb. I stepped back and said, “Wow! That’s my name too…” We have been communicating and her journey with her precious little Charlie has been inspiring to me. I am SO thankful for our two amazing little Charlie’s.
Lord, I pray for this sweet little boy. That you would give him joy, health, wisdom, and the pleasure of using all his unique giftings for YOU oh Lord. I pray that this little boy would continue to touch and bless the lives of MANY MANY MANY who cross his path. I pray for his sweet mom, that you would give her strength, wisdom, endurance, and peace- that comes only from you, the father of lights from whom all good gifts come from. Lord, thank you for this little boy Charlie whom you used to encourage my heart so intentionally that day. Thank you for the gift that he is to his family and all who know him. AMEN!
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place,
when I was woven together in the depths of the earth.
16 Your eyes saw my unformed body;
all the days ordained for me were written in your book
before one of them came to be.
17 How precious to me are your thoughts,[a] God!
How vast is the sum of them!
18 Were I to count them,
they would outnumber the grains of sand—
when I awake, I am still with you.