A Snowy Update

It’s a beautiful snowy day here at Children’s Hospital.  Charlie is sleeping soundly, all machines and alarms and pumps are quiet at this moment (a rare occasion), and worshipful Christmas music is playing.  Though the battle for contentment in these  circumstances is real, I am thankful to our mighty KING and RULER who can change the intense feelings of pain, sorrow, and frustration- to joy, thankfulness, and rejoicing … In even me!  And in His mercy He is doing so.  My sweet family came to visit last night and we went to dinner to celebrate Daniel’s birthday.  Oh it is SO wonderful to be with my whole family (though missing Charlie).  When they pulled up to the hospital with all it’s beautiful Christmas lights and bustling of people in and out of the doors my heart wanted to turn to grief.  I wanted to load up Charlie and add him to our delightful car full of people…I can’t tell you how badly I wanted to do this!  But God gave me the strength and the will to step out of the car, wave good-bye to the bulk of my family and enter the hospital world once again with gratitude and expectation for what God is doing and will do.

Charlie is doing better than he was just a few days ago.  He is sleeping better and having good happy alert times.  He is still fussier than usual- which could be due to any number of things.  His happiest place is definitely in mama’s arms.  The occupational therapist helped us work on hands to mouth and bringing arms and legs forward and midline today.  Charlie is a champ and working so hard.  We have a countdown until surgery.  The prayer is that he would not have any infections or difficulties between here and there.  29 days until surgery to repair his belly!

Sunday was a sweet day of worship and fellowship.  Sarah, Charlie, and I listened to the Word being preached, sang, prayed, and then enjoyed some visitors too.  A dear friend stopped by and loved on Charlie and encouraged my heart.  Our elders also came by to pray, read, and sing with us.  Oh what a blessing!


James 5:13-15  Is anyone among you in trouble? Let them pray. Is anyone happy? Let them sing songs of praise. 14 Is anyone among you sick? Let them call the elders of the church to pray over them and anoint them with oil in the name of the Lord. 15 And the prayer offered in faith will make the sick person well; the Lord will raise them up. If they have sinned, they will be forgiven. 16 Therefore confess your sins to each other and pray for each other so that you may be healed. The prayer of a righteous person is powerful and effective.

Continued prayer for healing from most recent infection, weaning of breathing support, and the ability to tolerate and output feeds if we attempt again soon.  THANK YOU!  Now snuggle up to your family and DO NOT take one moment with them for granted.

2 thoughts on “A Snowy Update

  1. Deb
    Just want you to know how inspiring you Charlie and your family are to us it’s like reading a new scripture reading his story wish I was there to help you pray for the day that Charlie comes home and I hope to meet him soon love and prayers Barbara and Rusty


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