The Marathon Route

Tentatively.  Yesterday’s conference was very helpful.  It was helpful for all of us to understand the route of this race.  To hear from each specialty what is happening and where we are aimed.  Charlie will be headed back to the Operating Room around January 12th to redo the duodenal atresia repair.  It could be a 6  hour surgery.  Somewhere around a month after that, assuming all goes well, we will repair his heart.  Between now and January 12th we will be trying to get milk into his intestines.  We are very hopeful that we can because it would be a huge help for Charlie.

The meeting was good.  However, it was hard for me to hear how long we will have to be here.  I realized that we will have been here during each of the four seasons by the time we get to load our chubby little bundle into the car and take him home.  I often think back to the day we left home, the moment I handed him to the ER nurse, and the feeling I had of surrender- relinquishment- and complete humility.  Thankfully the Lord Jesus Christ is no stranger to these things, and there is no one more trustworthy to surrender and relinquish to, or be humbled by.  Looking forward, counting the months, considering the cost, is indeed sobering.  However, I will consider it joy to suffer with Christ.

“Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, so that you may be perfect and complete, lacking in nothing.”  James 1:2-4

Thank you to so many of you that have linked arms with us in this battle.  Charlie is a treasure.  He is a gift from God.  He is a joy to be around.  Charlie has already impacted this world in HUGE ways.  I look forward to the journey that lies ahead for this precious little one.

Update 12-2-15

Thank you for praying!

Charlie is back. He is alert and happy-and have I mentioned how sweet he is?! He is NOT intubated which is a grand praise. We learned more from this procedure. There are basically 3 holes in the intestine. One (maybe 2) will need repair. The other 1 or 2 could heal on their own. The tube was put in through his wound/incision site with hopes of feeding through it in a week or so. They will look towards repairing these things mid-January, tentatively. All of this can be a bit breath-taking for mom, but I am again reminded that none of this takes God, Yahweh-Rophe by surprise.

Thank you for another day of laboring in love through prayer for Charlie. One mile at a time, we will run, and we will finish! by the great strength and mercy that comes from God…

Trusting Jesus,

Prayer Requests

This week is a big week for Charlie.  Today he goes for a procedure where they will attempt to put in a new tube that we can try feeding him through again.  Pray that they are able to complete this successfully, protection for Charlie, and that they would not need anesthesia to accomplish this.  If they end up needing anesthesia he will be reintubated,  which is always tough.

Tomorrow we will be having a “care conference” in regards to the long term plan for Charlie’s healing.  This will include everyone on his team in one room including nurses, doctors, surgeons, cardiologists, etc..  Pray that God would give wisdom and vision as they collaborate for what is best for Charlie.

My children still pray that Charlie could come home for Christmas.  They help increase my faith and remind me of the hope that we have in Jesus.  Though he may or may not be home for Christmas, I want to continue to pray in faith while bearing up under this trial.