A friend of mine, Audrey, commented on this photo when I posted it recently. She suggested that it looked like Charlie was signing “I love you!” My immediate thought was, why yes-of course he is! And if not, I know he would want too. Recently one of the nurses in this hospital commented on their amazement of our vast prayer network and love surrounding Charlie. I thought to myself, “YES, and he doesn’t even know the half of it!” Really, he has only seen a small portion of the prayer and love that surrounds little Charlie. We continue to stand in awe over the thousands of people that are helping us fight for Charlie’s precious life through prayer. Neighborhood prayer groups, our church, sister churches, blog readers, friends of a friend of a friend, Sunday schools, family, community workers, hospital janitors, national ministries, small children…the list is endless! We are grateful for our sweet mail lady who is often bringing stacks of mail to our door with cards, letters, and prayers from Samaritan Ministries and friends. So I think Audrey got it right…Charlie says thank you and I LOVE YOU!
We had a good week with little baby steps forward. Charlie currently has 3 leaks from his incision, but we have been feeding milk into his intestines for about a week. Until today that is. This morning the feeding tube clogged and the milk stopped. They tried everything they knew of to try to get it to open, to no avail. Monday morning he is scheduled to get a new tube. Also, his breathing has been a little bit more of a concern. We don’t have a lot of margin and are hoping for an improvement to avoid the need for any further intervention. Charlie’s road is tenuous…it is steep…it is trying…it is exhausting…it is painful…it is humbling…it is a privilege. It is a privilege to be called to suffer- to suffer for Jesus who is pro-life, who loves Charlie more than I am capable of, who has plans for Charlie’s life, who has given this boy a “fight” that is indescribable. It is an honor to walk a path that I could not walk alone, but God is with us and directing our ways. He is providing for us, He is strengthening us, He is cultivating joy, He is building character in our children, and He is showing Himself in mighty ways, even in the little things. As for any light at the end of this current tunnel- it may not be visible, but the light of Christ’s LOVE continues to illuminate the path through this tunnel, oh how I love my Father!
Romans 8: 35-39. What, then, shall we say in response to these things? If God is for us, who can be against us? He who did not spare his own Son, but gave him up for us all—how will he not also, along with him, graciously give us all things? Who will bring any charge against those whom God has chosen? It is God who justifies. Who then is the one who condemns? No one. Christ Jesus who died—more than that, who was raised to life—is at the right hand of God and is also interceding for us. Who shall separate us from the love of Christ? Shall trouble or hardship or persecution or famine or nakedness or danger or sword? As it is written: “For your sake we face death all day long;
we are considered as sheep to be slaughtered.”
No, in all these things we are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons,neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.
Please pray for Charlie’s caregivers. Pray for strength and protection for them. That they would know the love of Jesus. Pray that God would continue to give them a love for Charlie and the stamina to hang in there with us on this long journey. Pray for wisdom and knowledge for next steps with Charlie’s belly and heart.
Pray for Charlie: wound healing, feeding tube resolution to begin milk again soon, improved breathing status, strength, joy, the knowledge of the presence of God every minute.
Pray for continued protection for our family as we traverse this trial. Increased faith. Growth. Joy. Love.