Last night many things were on the brink of not looking so good. There were signs of a possible new clot, the appearance of an oncoming fever, difficulty breathing, no sign of bowel movement and what seemed with human eyes to be nothing positive on the horizon. My cry to the Lord is that I would be able (in ANY circumstance! Any “bad” news! Any disappointment!) be able to PRAISE HIM! It is the cry of my heart so deeply that I utter it often every day in preparation for whatever might be around the next corner. This adventure with Charlie has afforded me MUCH practice of this discipline. Practice does not mean perfect, but it is practice nonetheless. Some difficulties I have handled better than others. Last night I kept reminding myself of this great opportunity I have to praise God even when I don’t “feel” like it, even when the news is difficult, the prognosis bad, or there is no apparent reason to praise. I woke up in the middle of the night feeling afraid of the future, I cried out to God to help me not give way to this tempting thought…I began to thank him for every good thing I could think of, I began to ponder Jesus and the hope for eternity that I have, the promises of His Word to uphold, protect, and prosper us. This was enough to put me back to peaceful rest.
Psalms 42:5 Why are you cast down, O my soul, and why are you in turmoil within me? Hope in God; for I shall again praise him, my salvation
First thing this morning we changed Charlie’s diaper and found #2!!!!! I cannot tell you what a blessing it was!!! I wanted to run up and down the halls announcing it to everyone. I knew the surgery team and our primary nurses would join Sarah and I in our HAPPY DANCE for the sight of #2- for which we have prayed for and waited for for many weeks if not months!!!! None of those looming threats from last night came to be either! No new clot, no fever, nothing but good forward movement! God is gracious to give me ample opportunity to learn to choose my response to be that of praise…NO MATTER WHAT!
Job 1:21 the Lord gave, and the Lord hath taken away; blessed be the name of the Lord.
Charlie has had a good day. He is very comfortable, weaning on pain Meds, and weaning on O2 support with plans to extibate him tomorrow. The plans are to start feeding him breastmilk again on Tuesday. Pray that it all works and goes well. This nourishment would be paramount for Charlie.
ANOTHER PRAISE: Do you remember a post I made back in October titled “An Inspiration”? If you didn’t see it, you might enjoy reading it with new information…Saeed has been released from prison and is being reunited with his family! This is an event my church, family and I have prayed for, for many years. What an overwhelming blessing! This man has suffered for so long for being a Christian and now he has been set free.
At each and every turn of this it is proven that I have more growing to do. More trusting in God, more walking by faith, more learning to surrender my plans, more…. I am so grateful that my Heavenly Father loves me enough to grow me, change me…
2 Corinthians 4:8-9 We are hard pressed on every side, but not crushed; perplexed, but not in despair; 9 persecuted, but not abandoned; struck down, but not destroyed.
Today we celebrate our precious daughter’s birthday who was born and entered heaven on this day 13 years ago. Oh sweet Hannah, I miss you today. I think of your precious little 18 week old frame. Oh you were fearfully and wonderfully made! You were absolutely beautiful! It is a delight to imagine you in the presence of your Father, maybe dancing, maybe singing, and definitely worshiping God! I love you honey, I am grateful to have had a few months with you here- what a joy!
Charlie is doing well. He is very comfortable and healing nicely. It seems that there are always alarms on the horizon…blood clots, fevers, infection, unusual leaking. Thankfully none of these things have fully raised their heads as a problem, but seem to always loom. You could pray for all of these things, that they would not come to be. The next steps are to wean pain Meds, remove breathing tube, bowels to awaken, and successfully begin feeding. There is some discussion as to when the heart fix will be best timed.
Thank you again to SO many of you praying for Charlie, we love you!
It was a short night, finally getting settled in after 2am. Charlie came back from the OR after 11pm. From exit to entry it was 9.5 hours. The surgery was challenging but successful. Today was low key and was spent trying to figure out the best way to manage his pain. I think we finally got there. Charlie has been awake some, kicking and wriggling, and even trying to pull his tubes out. The surgeon said we would feed him in a week or so, very slowly. We are hopeful that will work. Thanks to all you prayer warriors, and thanks for all the emails, texts, and visitors yesterday.
We are thankful for a good and optimistic report from the surgeon, just now. It was a tedious surgery, but the Dr. feels they were able to accomplish what was needed for Charlie to be able to eat real food in the near future.
In summary, they did remove some of the more compromised intestine but left plenty intact. They sewed up other perforations, and even checked for leaks. They removed the adhesions/scar tissue that were the likely cause of previous blockage, and possible pain.
He is very stable now thanks to help from the pharmacy. We now pray that the bowels will begin to move. When we see regular output from his stoma, we can consider feeding him. The Dr. said no sooner than a week for feeds.
Just got word that our baby boy is headed back to the room. Pray for strength (any night owl prayer warriors) as they bring him back after a hard day and download all the information. Always a lot to take in… God is with us, HE is strong in our weakness.
Latest update from the OR is that Charlie is doing well and surgery is going as planned. Pray for stamina, wisdom, skill, precision, protection, and that everyone in that room would feel the presence of God. Keep fighting Charlie!
Bob just got a call from Michelle, an attending surgery nurse. She said that Charlie is doing fine. They are working diligently in his sweet belly. They anticipate a couple more hours. This photo was from this morning while Charlie basked in the sun awaiting surgery…Thank you for hanging in here with us!!!