The echocardiogram showed that Charlie’s heart still looks great. The small signs of hypertension (which are common after his type of surgery) have even improved! This was a great blessing to get this report amidst his difficulties yesterday. All of the tests that were done have come back clear so far. The 48 hour mark is when the tests are considered final, but the fact that nothing has started growing in the cultures yet means they are likely negative. SO…what caused Charlie’s episode? We do not know. Please pray for wisdom for us as we seek to get Charlie off of IV Meds and nutrition as well as the ventilator now, without these extreme dips for Charlie.
I am wondering if there is anyone out there that has worked with Trisomy 21 kids or some of these issues that might have ideas for us? If you have thoughts, please let us know.