It has been a delight to have some new friends taking up residency here at Children’s with us. It’s a sort of slumber party. Ok, actually it’s very little like a slumber party but it is still a great encouragement. Melody is a little friend that has been a tremendous encouragement to us since the beginning of our Charlie journey. Melody was born 3 years ago with Trisomy 18. Her story of God’s grace and mercy as well as Melody’s strength in overcoming the odds has been such a beautiful testimony. Her mother is a deep well of wisdom and faith and has sacrificially poured out ideas for Charlie and I as we walk this unique road that she understands. Melody was here for several days which allowed for her mother and I to visit, walk, and encourage one another. Thankfully they are home again! I would encourage you to visit Melody’s website to read the amazing story of her precious life and the dangerous of labeling children as “incompatible with life!” Melody is a precious little girl, full of life and vigor, she is healthy, vibrant, and a tremendous joy to everyone that knows her. I am so thankful her family didn’t give up when they were told she was “incompatible with life.” This photo displays her great compatibility with life!
During the time Melody was here another family joined us here at Children’s. We had not met them before but we had mutual friends and a mutual love for God. They recognized Bob and Sarah one day from a wedding we both attended. One of the daughters came to introduce herself. They have a son that is braving heart complications with great courage. It has been fun to have daily visitors from their family and they have been so kind to share meals too. Today it was fun to meet their whole family and enjoy a short message from the Bible from their pastor, sing, pray, and share a meal in the PICU lobby. I am thankful for people who that have experienced medical challenges in their family and walk through them with great joy and endurance, embracing what God has given them.
Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.
2 Corinthians 1:3-4