ONWARD and UPWARD! Charlie is moving in the right direction…HOME!!! We still don’t know when that will happen exactly, but we are moving that way. Things have been relatively smooth. We were able to remove one of his pain meds two days ago. It went well until we hit a period of “withdrawal”- this was heartbreaking but thankfully didn’t last too long. Since we were able to get rid of that med they took out his second central line today! YAY!!! So we now just have the one line that accomodates what he needs for now and we are able to come home with it. The main things that need to happen now are for his lungs to develop a little bit more so we can transition him to a “home vent.” We will need to be stable on this for a couple of weeks to prove he is able to remain stable enough to come home.
Charlie is enjoying much more awake and alert time, play time, and therapies to recapture the months he has been fighting for life and not able to develop like a regular baby. He is giving us smiles and sometimes they involve his WHOLE face! He is amazing. So amazing!
With Charlie being so much more stable I have had the joy of spending more time with my other children. Thanks to so many friends and family that have helped us by being with Charlie, holding him, reading to him, and loving him. This is such a blessing and I often wonder what sort of blessings this will deposit into who Charlie is and how he is gifted…oh to be loved by SO SO SO many. Even his doctors and nurses love him. Many of his nurses come to visit him on days they have different assignments. Everyone is so happy to see him doing well. The pictures above demonstrate fresh wild flowers picked for me by my sweet Ikey, warm brownies from the kitchen, hours of joy, worship, and laughter on the trampoline, a Rockies game thanks to our friends the Martinez’s. Times like these have proven to sweeten our relationships, cause us to not take each other for granted, and bubble over with gratitude for even the small things. Lord, thank you for the gift of Charlie that has helped us all to see a little better- what really matters in this life!
Zephaniah 3:17 – The LORD your God is in your midst, a mighty one who will save; he will rejoice over you with gladness; he will quiet you by his love; he will exult over you with loud singing.