Charlie’s Progress

Greetings from Charlie at Children’s Hospital! Charlie has had some really amazing days with lots of progress. He is on the fast track home! We are so thankful and filled with rejoicing. The days are still full and long and we anticipate the intensity of our journey picking up again as we receive loads of training and preparation for going home with our little lion-heart. We will be moved to the 9th floor within the next couple of weeks where they begin to turn everything over to mom and dad to prove our capability to care for Charlie. They do many simulations, classes, tests, and then a final exam- 24-48 hours alone with Charlie with no staff to assist unless there is an emergency. I am working diligently to be proficient in everything I need to know.  It comes easily as I have been doing or watching for many months now.  Who would think that changing a trach tube could actually be really neat?! Praise God for giving me the desire to have fun learning things I never would have likely signed up to learn!

We have one little road block that could slow us down from coming home, and so I am asking you to pray. Charlie continues to “dump” stool (too much liquid comes out too fast). We need his little body to start slowing down, digesting, and absorbing his food and fluids. He has done well before and so we know his body knows how. God has been SO faithful in bringing wisdom at the right time, we trust He will continue!
“If any of you lack wisdom, let him ask of God, that giveth to all men liberally, and upbraideth not; and it shall be given him.” James 1:5

Charlie has begun sucking really well.  He is showing signs of wanting to nurse or eat by mouth- this is all very encouraging.  He loves to be held, read too, sung too, play with his o-ball, sit in his stroller, do exercises and play games with the physical therapists.  He is so much fun to be with.  Yesterday the girl’s and I along with a good friend took a class to learn everything about how to care for the central line.  That was fun!  We had a “Chester” the chest to practice changing caps and dressings.  We had lots of laughs and loved learning the nitty gritty of it all.  Charlie loved his visit with his big sister’s- oh how he loves and trusts them, it is quite sweet!

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