We are getting closer each day to moving towards the ninth floor. We received a tour and got the low down on all of the differences of the ninth floor versus the NICU. I nearly cried when they showed me the PRIVATE rooms. YES! No more fish bowl living. The rooms have no open glass windows or doors and she even said that they knock before they come in…what? Don’t get me wrong… I am SO grateful for the great, 24/7 care we have received over the last nine months, but imagining being in a room alone with my Charlie, where I am his primary care giver is such a wonderful thought. We will miss the sweet nurses that have cared for and nurtured Charlie with all their hearts. Sadly, we can’ take them up with us. We couldn’t be more thrilled about the steps towards home!
Once we get to the ninth floor, it will probably take us 3 weeks of full time hospital to get all the training, proficiency, and requirements met so that we can bring Charlie home.
The med that they used to try to slow down or stop the output didn’t work as effectively as we had hoped and so they stopped that and will give his body time to sort things out. Our hope and prayer is that his body will maintain this lower output as we remove the med and that it would continue to drop.
OUTPUT SLOW DOWN; BOWELS WORK PROPERLY; BEGIN MILK AGAIN; STRENGTHENED EYE MUSCLES SO THEY DON’T CROSS; SMOOTH TRANSITION TO NINTH FLOOR AND HOME; PROTECTION FOR SICKNESS AND INFECTION.